The results of Jackson's MRI showed that he does not have a tethered spinal cord (which is good), but it did confirm that he does have a large chiari malformation. Therefore, we scheduled decompression surgery for January 4. This is a big surgery and with a fairly long recovery time.
Eric and I are so thankful for the internet and the ability for us to connect with other parents who have children with M-CM. I actually feel very prepared and well informed about what to expect with this surgery because of all the input I have received from so many parents who have already gone through this. We are also very thankful for a great neurosurgeon who actually listens to what we have say and takes it into consideration. And finally, we are so thankful for all of you who so faithfully keep us in your thoughts and prayers. We are so very blessed!
Friday, November 27, 2009
Thursday, November 19, 2009
Please No More ER Visits after MRIs
Ok...so you all remember the post Long Day on October 15th. Well this should have been entitled Longer Day on November 16th...Sherry and Jackson traveled to G-Rap to have another MRI on the upcoming surgery process on whether or not Jackson has a tethered cord and a syrinx (fluid in spinal column). We know that Jackson already has to have decompression surgery and this was more to see if this also was occuring, so the neurosurgeon could take care of all at the same time....MRI results to come next Tuesday Nov. 24th.
Well, after Jackson got back from the MRI, he had a barky cough and stridor (signs of croup). So gets back from MRI at 3:00 (got there at 8 AM), goes to Pediatrician at 4:00, goes to ER at 6:00. Long story short, Jackson stayed over two nights...Sherry and I took shifts. She took nights and Tuesday I spent about 7 hours with him. In the end, he basically had "severe irritation" on this trachial tube when he was sedated for the MRI...Let's just say he hates Medical people...Ok so this Halloween costume is out. I am sure he will learn to love them as the years go by and realize what great medical people he has to take care of him...just not today.
Thanks for everyone's thoughts and prayers...we never can have too many. We will update everyone on the results of the MRI and scheduling of the Decompression Surgery. Happy Thanksgiving!! We have so much to be thankfulful for!!
Gobble Gobble
Eric
Well, after Jackson got back from the MRI, he had a barky cough and stridor (signs of croup). So gets back from MRI at 3:00 (got there at 8 AM), goes to Pediatrician at 4:00, goes to ER at 6:00. Long story short, Jackson stayed over two nights...Sherry and I took shifts. She took nights and Tuesday I spent about 7 hours with him. In the end, he basically had "severe irritation" on this trachial tube when he was sedated for the MRI...Let's just say he hates Medical people...Ok so this Halloween costume is out. I am sure he will learn to love them as the years go by and realize what great medical people he has to take care of him...just not today.
Thanks for everyone's thoughts and prayers...we never can have too many. We will update everyone on the results of the MRI and scheduling of the Decompression Surgery. Happy Thanksgiving!! We have so much to be thankfulful for!!
Gobble Gobble
Eric
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